I said in a previous post that I was not going to discuss this latest treatment issue any further. But with the private messages and phone calls I have received I have decided to write this post as most people have clicked onto what is going on without me actually saying it.
Let’s make this very simple. Yes, I am having another chemo treatment after stopping treatment around a year ago now. There are reasons for this after recent things came to light. And I spoke to a very close friend about it and after that chat the decision was made and within days the treatment began. It appears they maybe putting in a line and me having the treatment at home. Because things have to be very strict for me at the moment, because obviousy chemo affects your immune system and some other medication I am on also effects my immune system, but I am not prepared to give up that other injection either because of how well it is working and how much self confidence it has given me and I don’t want to lose that now.
I have some smart friends who clicked onto what is going on. Me begin constantly sick and checking into the hospital several times a week maybe gave it away. No, I will not continue with regular updates on this at the moment still. I need time. This is hard for me as I know what is coming and how this is going to play out after the several times I went through this before. But no matter what happens this time I will not do it again. I know the consequences and I know what will happen. Honestly, people are surprised I am still here now. But I am a strong person and been through a hell of a lot of things over the last 4 decades.
I ask you to please respect my decision on this. If I want to share what is going on I will. More than likely on here instead of over Facebook. My blog auto posts a link to my Facebook and Twitter account anyway when I publish my post. Just give me time, this isn’t an easy road for me at the moment whilst I am also trying to deal with other things at the same time.
Now, recently I got a letter from the NDIS requesting further information about my mental illness for them to come on board and help me with the things I need help with. Later this morning we will be submitting a hell of a lot more reports and documents to their Central Coast office. They will now have everything … If it still isn’t enough we have decided we are just going to appeal their decision. Do you know how hard it is to find medical records from when I was 14 onwards when I used to move around town to town, state to state all the time and constantly seeing different doctors and specialists. And legally most of those early day records are now gone. They only have to keep records for 7 years legally and then they can destroy them. Back in the day everything was done on paper, they didn’t have their computer systems.
I also now feel a little more comfortable in going out from home at the moment now that I have a safe to keep my controlled drugs in. This was a major concern for me and that has now been sorted thanks to my caseworker. And there is so much room in there it isn’t funny. It is big enough to keep a 15.6″ laptop and then still plenty of room with that in there. I also like the fact that even know it is protected by a long PIN code, if I forget that or the batteries to the keypad go flat I can override it with a key. One key with me and another key locked in a safe in the office of my caseworkers.
Anyway that is enough for now. I will write again soon …